MarfanLife.net

MarfanLife.net includes:

• Marfan Life forum, where people discuss issues they have with Marfan syndrome or just get to know each other openly on a public bulletin board
• Marfan-List, the longest-running email discussion group for Marfan syndrome. Posts are not made public.
• Marfan news blog, which has links to current news articles in the press
• Marfan Syndrome wiki, with information provided by users for other users about living with the Marfan syndrome. Also includes lists of online Marfan syndrome groups, blogs and websites of people with Marfan syndrome. Come join the wiki and add to the knowledge!

MarfanLife.net is owned and operated by Jeanette Navia.